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I wrote this 9 years into our journey with Autism. And frankly, not much has changed. As The Boys moved into adulthood, we’ve faced even more challenges with lack of acceptance mostly within the Special Needs community as well as meaningful action by those in a position to make real positive change.
“While most of the world will move on and forget about Autism until next April, we’ll continue taking it one day at a time as we approach the “9th anniversary” (May 27, 2005) of getting the “official” diagnosis.
As caregivers and teachers, you’re able to “leave it at the office”. As family and friends you’re able to “see you next time” or walk away when its hard or uncomfortable. But as a parent, its 24/7/365 for their entire life, because more often than not, they’ll be at home long after their typical peers have moved on to college, gotten married and started their own families. And as most of you know, I’m an only child and they have no siblings to care for them once I’m gone. So then what?
I say all of this not as a plea for sympathy, it just is what it is. But as a reminder that for some of us, our “normal” is not your “normal” and so our outlook on the day to day and big picture of life is always and will forever be based on and rooted in the fact that most of the world may never accept our children and that we may never see the kind of help that’s needed for them and us as families.
To be continued…”
“NAA’s mission is to respond to the most urgent needs of the community. Our programs are designed to bring real help to families who are struggling to provide for their children and to keep them safe. We need your help to fund these programs. We understand that a financial donation is not possible for many of us, but you can still help by giving just a few minutes of your time to share this information.” Autism Action Month – You can help!
I won’t be spending this month telling you which organization to support, what to wear or how to “celebrate” (I do not celebrate this diagnosis in any way), but I will be sharing meaningful ways you can show your support all year long.